Providing support to people affected by Turner Syndrome and their families in New Zealand
Providing support to people affected by Turner Syndrome and their families in New Zealand
Hello, my name is Jacqui and I have Thalia (8 years old) with Turners. Thalia was diagnosed at 1 week of age due to her being born prematurely. Like the rest of you our family has been on a roller coaster dealing with this condition. Thalia has three heart conditions, but so far has required no surgery. She is awaiting her 5th set of grommets and we are hopeful these ones last more than 3 months!
Thalia is behind her peers at school, but has a great attitude to learning. Recently Thalia has been diagnosed with ADHD. This was no great surprise to us as Thalia is a very busy girl. The psychologist recommended Ritalin; we have refused this so far.
We were advised by a naturopath to try her on Omega 3 fish oil. So we stumbled across the best medication ever!
Thalia now has 5mls of Metagenics Kids Omega Care twice a day. What a difference there has been. She has gone from a very stroppy girl to a fairly compliant one. She has gone from a level three reader to level 12 in just two terms! It does cost $31.50 a month, but it is well worth it. Added to that we have put her onto 2mg of Melatonin at night. She now asks to go to bed at 8.30pm instead of being forced in at 10.30pm. This again costs $30 a month, but it is worth every penny!
I have recently trained as a support parent with Parent to Parent, in the hopes to help other parents going through the same issues. As a result of this I have decided that it is time to get a support branch up and running down this way.
Over the next few months I hope to make contact with families down the South Island in the hope to set up a meeting together.
I live in Dunedin, but have access to video conferencing facilities. If you live in the South Island or know of a family that does then please let me know.
Jacqui
jak_fras "at" xtra.co.nz
Telephone: 03 487 9585